Outreach to Veterans with ALS

Our nation's ALS veterans are entitled to benefits, medical care and the chance for a cure

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Voluntary muscle action is progressively affected, and patients in the later stages of the disease may become paralyzed. The disease is almost always fatal.

In most cases, though, ALS does not affect senses, personality, intelligence, or memory. ALS patients remain aware of those around them and what is happening—they can tell when the disease is getting worse.


No one knows what causes the disease, but according to studies conducted by the National Academies of Science, military veterans within the last century are nearly twice as likely to develop ALS as individuals with no history of military service, regardless of where or when they served.

Paralyzed Veterans of America began outreach to veterans with ALS in 2008, when a Department of Veterans Affairs rule change made ALS a service-connected disease.

Since the rule change, PVA’s national service officers and senior benefits advocates have represented around 11,000 veterans with ALS, and about 7,000 surviving spouses with claims for monetary benefits and quality health care. Claims filed on their behalf have resulted in $900 million in monetary and additional benefits.

"We will continue to reach out to as many eligible veterans with ALS and their survivors as possible, and advocate on their behalf, in order to ensure they receive the benefits they deserve,” said Heather Ansley, PVA’s associate executive director of government relations.


In 2008, Congress also enacted the ALS Registry Act to create and maintain a registry of persons with ALS. The registry, launched in October 2010 and maintained by the Centers for Disease Control, seeks to help researchers estimate how many people have the disease, understand more about who gets the disease and potentially find a cure.

Veterans with ALS or their family members are urged to participate in the registry and contact the Paralyzed Veterans of America service office in their area.